--- title: "Cure Usher Syndrome — check charity number 1181293 | CharityCompare" description: "Is Cure Usher Syndrome a legitimate UK charity? Check charity number 1181293. General Charitable Purposes charity based in Valdene Drive. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/cure-usher-syndrome retrieved: 2026-08-26T07:55:46.101Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer Cure Usher Syndrome is a registered charity (number 1181293) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; the advancement of health or saving of lives; disability. Its latest reported income was £144,886 (year ending 2024-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about Cure Usher Syndrome? Registered charity number 1181293 Status Registered (active) Charity type CIO Location Valdene Drive Latest income (year ending 2024-12-31) £144,886 Website [www.cureushersyndrome.com](http://www.cureushersyndrome.com/) ## What does Cure Usher Syndrome do? Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss. ## What causes is Cure Usher Syndrome registered for? General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Cure Usher Syndrome yet? The Clarity Score is computed from full financial filing history. Cure Usher Syndrome is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=cure-usher-syndrome&type=claim) [Visit charity website](http://www.cureushersyndrome.com/) ## Frequently asked questions Is Cure Usher Syndrome a legitimate charity? Yes. Cure Usher Syndrome is a legitimate registered charity (charity number 1181293) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is Cure Usher Syndrome's charity number? Cure Usher Syndrome's charity number is 1181293. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1181293? Search 1181293 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Cure Usher Syndrome do? Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss. Does Cure Usher Syndrome have reviews and complaints? CharityCompare does not host public user reviews for Cure Usher Syndrome. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Cure Usher Syndrome? Cure Usher Syndrome's website is http://www.cureushersyndrome.com — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1181293).