---
title: "Ectodermal Dysplasia Society — check charity number 1089135 | CharityCompare"
description: "Is Ectodermal Dysplasia Society a legitimate UK charity? Check charity number 1089135. Education/training charity based in Leckhampton. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare."
source: https://www.charitycompare.org.uk/charity/ectodermal-dysplasia-society
retrieved: 2026-08-23T13:16:12.364Z
license: "Charity data © Crown copyright, Open Government Licence v3.0"
---

Quick answer

Ectodermal Dysplasia Society is a registered charity (number 1089135) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: education/training; the advancement of health or saving of lives; disability. Its latest reported income was £107,407 (year ending 2025-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

## What are the key facts about Ectodermal Dysplasia Society?

Registered charity number

1089135

Status

Registered (active)

Charity type

Other

Location

Leckhampton

Latest income (year ending 2025-12-31)

£107,407

Website

[www.edsociety.co.uk](http://www.edsociety.co.uk/)

## What does Ectodermal Dysplasia Society do?

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

## What causes is Ectodermal Dysplasia Society registered for?

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

## Why is there no Clarity Score for Ectodermal Dysplasia Society yet?

The Clarity Score is computed from full financial filing history. Ectodermal Dysplasia Society is on the official
register but outside the detailed-filing group we currently score (or awaiting its first filings), so
we show its official register record instead of a rating. Its score appears automatically once enough
filing data exists — never by payment.
[How scoring works](https://www.charitycompare.org.uk/methodology)

## Is this your charity?

Claim this profile free to add your own description, correct details, or respond publicly.
Optional [partner plans](https://www.charitycompare.org.uk/partners)
add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.

[Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=ectodermal-dysplasia-society&type=claim)
[Visit charity website](http://www.edsociety.co.uk/)

## Frequently asked questions

Is Ectodermal Dysplasia Society a legitimate charity?

Yes. Ectodermal Dysplasia Society is a legitimate registered charity (charity number 1089135) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.

What is Ectodermal Dysplasia Society's charity number?

Ectodermal Dysplasia Society's charity number is 1089135. Check that number on the Charity Commission register or this CharityCompare profile before you donate.

How do I check charity number 1089135?

Search 1089135 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.

What does Ectodermal Dysplasia Society do?

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

Does Ectodermal Dysplasia Society have reviews and complaints?

CharityCompare does not host public user reviews for Ectodermal Dysplasia Society. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.

How can I donate to Ectodermal Dysplasia Society?

Ectodermal Dysplasia Society's website is http://www.edsociety.co.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-31,
used under the
[Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/).
Always verify current details on the
[official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1089135).