---
title: "Global Porphyria Advocacy Coalition — check charity number 1189694 | CharityCompare"
description: "Is Global Porphyria Advocacy Coalition a legitimate UK charity? Check charity number 1189694. The Advancement Of Health Or Saving Of Lives charity based in New Costessey. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare."
source: https://www.charitycompare.org.uk/charity/global-porphyria-advocacy-coalition
retrieved: 2026-08-23T12:26:26.346Z
license: "Charity data © Crown copyright, Open Government Licence v3.0"
---

Quick answer

Global Porphyria Advocacy Coalition is a registered charity (number 1189694) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives; disability. Its latest reported income was £24,853 (year ending 2024-11-10). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

## What are the key facts about Global Porphyria Advocacy Coalition?

Registered charity number

1189694

Status

Registered (active)

Charity type

CIO

Location

New Costessey

Latest income (year ending 2024-11-10)

£24,853

Website

[WWW.GPAC-PORPHYRIA.ORG](http://www.gpac-porphyria.org/)

## What does Global Porphyria Advocacy Coalition do?

The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.

## What causes is Global Porphyria Advocacy Coalition registered for?

The Advancement Of Health Or Saving Of LivesDisability

## Why is there no Clarity Score for Global Porphyria Advocacy Coalition yet?

The Clarity Score is computed from full financial filing history. Global Porphyria Advocacy Coalition is on the official
register but outside the detailed-filing group we currently score (or awaiting its first filings), so
we show its official register record instead of a rating. Its score appears automatically once enough
filing data exists — never by payment.
[How scoring works](https://www.charitycompare.org.uk/methodology)

## Is this your charity?

Claim this profile free to add your own description, correct details, or respond publicly.
Optional [partner plans](https://www.charitycompare.org.uk/partners)
add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.

[Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=global-porphyria-advocacy-coalition&type=claim)
[Visit charity website](http://www.gpac-porphyria.org/)

## Frequently asked questions

Is Global Porphyria Advocacy Coalition a legitimate charity?

Yes. Global Porphyria Advocacy Coalition is a legitimate registered charity (charity number 1189694) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.

What is Global Porphyria Advocacy Coalition's charity number?

Global Porphyria Advocacy Coalition's charity number is 1189694. Check that number on the Charity Commission register or this CharityCompare profile before you donate.

How do I check charity number 1189694?

Search 1189694 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.

What does Global Porphyria Advocacy Coalition do?

The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.

Does Global Porphyria Advocacy Coalition have reviews and complaints?

CharityCompare does not host public user reviews for Global Porphyria Advocacy Coalition. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.

How can I donate to Global Porphyria Advocacy Coalition?

Global Porphyria Advocacy Coalition's website is http://WWW.GPAC-PORPHYRIA.ORG — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-31,
used under the
[Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/).
Always verify current details on the
[official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1189694).