--- title: "International Prader-Willi Syndrome Organisation — check charity number 1182873 | CharityCompare" description: "Is International Prader-Willi Syndrome Organisation a legitimate UK charity? Check charity number 1182873. The Advancement Of Health Or Saving Of Lives charity based in Salisbury House. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/international-prader-willi-syndrome-organisation retrieved: 2026-08-23T11:27:55.417Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer International Prader-Willi Syndrome Organisation is a registered charity (number 1182873) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives; disability. Its latest reported income was £206,698 (year ending 2025-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about International Prader-Willi Syndrome Organisation? Registered charity number 1182873 Status Registered (active) Charity type CIO Location Salisbury House Latest income (year ending 2025-12-31) £206,698 Website [www.ipwso.org](https://www.ipwso.org/) ## What does International Prader-Willi Syndrome Organisation do? IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available. ## What causes is International Prader-Willi Syndrome Organisation registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for International Prader-Willi Syndrome Organisation yet? The Clarity Score is computed from full financial filing history. International Prader-Willi Syndrome Organisation is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=international-prader-willi-syndrome-organisation&type=claim) [Visit charity website](https://www.ipwso.org/) ## Frequently asked questions Is International Prader-Willi Syndrome Organisation a legitimate charity? Yes. International Prader-Willi Syndrome Organisation is a legitimate registered charity (charity number 1182873) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is International Prader-Willi Syndrome Organisation's charity number? International Prader-Willi Syndrome Organisation's charity number is 1182873. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1182873? Search 1182873 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does International Prader-Willi Syndrome Organisation do? IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available. Does International Prader-Willi Syndrome Organisation have reviews and complaints? CharityCompare does not host public user reviews for International Prader-Willi Syndrome Organisation. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to International Prader-Willi Syndrome Organisation? International Prader-Willi Syndrome Organisation's website is https://www.ipwso.org/ — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1182873).