--- title: "Kleefstra Syndrome UK — check charity number 1208059 | CharityCompare" description: "Is Kleefstra Syndrome UK a legitimate UK charity? Check charity number 1208059. Disability charity based in waterside business park. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/kleefstra-syndrome-uk retrieved: 2026-08-23T20:56:10.393Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer Kleefstra Syndrome UK is a registered charity (number 1208059) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: disability. Its latest reported income was £15,339 (year ending 2025-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about Kleefstra Syndrome UK? Registered charity number 1208059 Status Registered (active) Charity type CIO Location waterside business park Latest income (year ending 2025-12-31) £15,339 Website [www.kleefstrasyndrome.org](http://www.kleefstrasyndrome.org/) ## What does Kleefstra Syndrome UK do? The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome ## What causes is Kleefstra Syndrome UK registered for? Disability ## Why is there no Clarity Score for Kleefstra Syndrome UK yet? The Clarity Score is computed from full financial filing history. Kleefstra Syndrome UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=kleefstra-syndrome-uk&type=claim) [Visit charity website](http://www.kleefstrasyndrome.org/) ## Frequently asked questions Is Kleefstra Syndrome UK a legitimate charity? Yes. Kleefstra Syndrome UK is a legitimate registered charity (charity number 1208059) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is Kleefstra Syndrome UK's charity number? Kleefstra Syndrome UK's charity number is 1208059. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1208059? Search 1208059 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Kleefstra Syndrome UK do? The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome Does Kleefstra Syndrome UK have reviews and complaints? CharityCompare does not host public user reviews for Kleefstra Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Kleefstra Syndrome UK? Kleefstra Syndrome UK's website is http://www.kleefstrasyndrome.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1208059).