---
title: "Myotubular Trust — check charity number 1137177 | CharityCompare"
description: "Is Myotubular Trust a legitimate UK charity? Check charity number 1137177. The Advancement Of Health Or Saving Of Lives charity based in London. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare."
source: https://www.charitycompare.org.uk/charity/myotubular-trust
retrieved: 2026-08-25T03:41:18.017Z
license: "Charity data © Crown copyright, Open Government Licence v3.0"
---

Quick answer

Myotubular Trust is a registered charity (number 1137177) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives; disability. Its latest reported income was £138,416 (year ending 2024-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

## What are the key facts about Myotubular Trust?

Registered charity number

1137177

Status

Registered (active)

Charity type

Charitable company

Location

London

Latest income (year ending 2024-12-31)

£138,416

Website

[www.myotubulartrust.org](http://www.myotubulartrust.org/)

## What does Myotubular Trust do?

The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

## What causes is Myotubular Trust registered for?

The Advancement Of Health Or Saving Of LivesDisability

## Why is there no Clarity Score for Myotubular Trust yet?

The Clarity Score is computed from full financial filing history. Myotubular Trust is on the official
register but outside the detailed-filing group we currently score (or awaiting its first filings), so
we show its official register record instead of a rating. Its score appears automatically once enough
filing data exists — never by payment.
[How scoring works](https://www.charitycompare.org.uk/methodology)

## Is this your charity?

Claim this profile free to add your own description, correct details, or respond publicly.
Optional [partner plans](https://www.charitycompare.org.uk/partners)
add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.

[Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=myotubular-trust&type=claim)
[Visit charity website](http://www.myotubulartrust.org/)

## Frequently asked questions

Is Myotubular Trust a legitimate charity?

Yes. Myotubular Trust is a legitimate registered charity (charity number 1137177) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.

What is Myotubular Trust's charity number?

Myotubular Trust's charity number is 1137177. Check that number on the Charity Commission register or this CharityCompare profile before you donate.

How do I check charity number 1137177?

Search 1137177 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.

What does Myotubular Trust do?

The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

Does Myotubular Trust have reviews and complaints?

CharityCompare does not host public user reviews for Myotubular Trust. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.

How can I donate to Myotubular Trust?

Myotubular Trust's website is http://www.myotubulartrust.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-31,
used under the
[Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/).
Always verify current details on the
[official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1137177).