--- title: "ROHHAD Association — check charity number SC045645 | CharityCompare" description: "Is ROHHAD Association a legitimate UK charity? Check charity number SC045645. the advancement of education charity based in West Dunbartonshire. Official OSCR record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/rohhad-association retrieved: 2026-08-24T09:53:18.675Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer ROHHAD Association is a registered charity (number SC045645) on the Office of the Scottish Charity Regulator (OSCR) register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of education; the advancement of health; the saving of lives. Its latest reported income was £33,227 (year ending 2025-05-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about ROHHAD Association? Registered charity number SC045645 Status Registered (active) Charity type SCIO (Scottish Charitable Incorporated Organisation) Location West Dunbartonshire Latest income (year ending 2025-05-31) £33,227 Website [www.rohhadassociation.com](http://www.rohhadassociation.com/) ## What does ROHHAD Association do? The Rohhad Association supports people affected by ROHHAD Syndrome through improved quality of life initiatives, raising awareness, and advancing research. We work closely with the ROHHAD International Consortium—founded by our co-founder Elisabeth Hunter during the COVID pandemic—and collaborate with charities worldwide, including ROHHAD Fight Inc, ROHHAD Association Argentina, Belgium, and Nordic. Each year, our core activities include awareness campaigns, fundraising, advocacy, forming strategic partnerships, hosting online support groups, providing one-to-one peer and family support, and… ## What causes is ROHHAD Association registered for? the advancement of educationthe advancement of healththe saving of lives ## Why is there no Clarity Score for ROHHAD Association yet? The Clarity Score is computed from full financial filing history. ROHHAD Association is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=rohhad-association&type=claim) [Visit charity website](http://www.rohhadassociation.com/) ## Frequently asked questions Is ROHHAD Association a legitimate charity? Yes. ROHHAD Association is a legitimate registered charity (charity number SC045645) regulated by the Office of the Scottish Charity Regulator (OSCR). You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is ROHHAD Association's charity number? ROHHAD Association's charity number is SC045645. Check that number on the OSCR register or this CharityCompare profile before you donate. How do I check charity number SC045645? Search SC045645 on the Office of the Scottish Charity Regulator (OSCR) register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does ROHHAD Association do? The Rohhad Association supports people affected by ROHHAD Syndrome through improved quality of life initiatives, raising awareness, and advancing research. We work closely with the ROHHAD International Consortium—founded by our co-founder Elisabeth Hunter during the COVID pandemic—and collaborate with charities worldwide, including ROHHAD Fight Inc, ROHHAD Association Argentina, Belgium, and Nordic. Each year, our core activities include awareness campaigns, fundraising, advocacy, forming strategic partnerships, hosting online support groups, providing one-to-one peer and family support, and… Does ROHHAD Association have reviews and complaints? CharityCompare does not host public user reviews for ROHHAD Association. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Office of the Scottish Charity Regulator (OSCR) or the Fundraising Regulator as appropriate. How can I donate to ROHHAD Association? ROHHAD Association's website is http://www.rohhadassociation.com — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Office of the Scottish Charity Regulator (OSCR) register extract dated 2026-08-07, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://www.oscr.org.uk/about-charities/search-the-register/charity-details?number=SC045645).