--- title: "The 1p36 Family Trust — check charity number 1181988 | CharityCompare" description: "Is The 1p36 Family Trust a legitimate UK charity? Check charity number 1181988. The Advancement Of Health Or Saving Of Lives charity based in New Ash Green. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/the-1p36-family-trust retrieved: 2026-08-23T14:44:23.924Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer The 1p36 Family Trust is a registered charity (number 1181988) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives. Its latest reported income was £20,777 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about The 1p36 Family Trust? Registered charity number 1181988 Status Registered (active) Charity type CIO Location New Ash Green Latest income (year ending 2025-03-31) £20,777 Website [www.1p36.co.uk](http://www.1p36.co.uk/) ## What does The 1p36 Family Trust do? Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome. ## What causes is The 1p36 Family Trust registered for? The Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for The 1p36 Family Trust yet? The Clarity Score is computed from full financial filing history. The 1p36 Family Trust is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=the-1p36-family-trust&type=claim) [Visit charity website](http://www.1p36.co.uk/) ## Frequently asked questions Is The 1p36 Family Trust a legitimate charity? Yes. The 1p36 Family Trust is a legitimate registered charity (charity number 1181988) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is The 1p36 Family Trust's charity number? The 1p36 Family Trust's charity number is 1181988. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1181988? Search 1181988 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does The 1p36 Family Trust do? Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome. Does The 1p36 Family Trust have reviews and complaints? CharityCompare does not host public user reviews for The 1p36 Family Trust. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to The 1p36 Family Trust? The 1p36 Family Trust's website is http://www.1p36.co.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1181988).