--- title: "The Ehlers-Danlos Support UK — check charity number 1157027 | CharityCompare" description: "Is The Ehlers-Danlos Support UK a legitimate UK charity? Check charity number 1157027. General Charitable Purposes charity based in 66 Lavender Hill. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/the-ehlers-danlos-support-uk retrieved: 2026-08-25T09:56:49.680Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer The Ehlers-Danlos Support UK is a registered charity (number 1157027) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; education/training; the advancement of health or saving of lives. Its latest reported income was £434,770 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about The Ehlers-Danlos Support UK? Registered charity number 1157027 Status Registered (active) Charity type Charitable company Location 66 Lavender Hill Latest income (year ending 2025-03-31) £434,770 Website [www.ehlers-danlos.uk](http://www.ehlers-danlos.uk/) ## What does The Ehlers-Danlos Support UK do? Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE' ## What causes is The Ehlers-Danlos Support UK registered for? General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for The Ehlers-Danlos Support UK yet? The Clarity Score is computed from full financial filing history. The Ehlers-Danlos Support UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=the-ehlers-danlos-support-uk&type=claim) [Visit charity website](http://www.ehlers-danlos.uk/) ## Frequently asked questions Is The Ehlers-Danlos Support UK a legitimate charity? Yes. The Ehlers-Danlos Support UK is a legitimate registered charity (charity number 1157027) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is The Ehlers-Danlos Support UK's charity number? The Ehlers-Danlos Support UK's charity number is 1157027. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1157027? Search 1157027 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does The Ehlers-Danlos Support UK do? Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE' Does The Ehlers-Danlos Support UK have reviews and complaints? CharityCompare does not host public user reviews for The Ehlers-Danlos Support UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to The Ehlers-Danlos Support UK? The Ehlers-Danlos Support UK's website is http://www.ehlers-danlos.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1157027).