--- title: "Xlh UK — check charity number 1196811 | CharityCompare" description: "Is Xlh UK a legitimate UK charity? Check charity number 1196811. The Advancement Of Health Or Saving Of Lives charity based in Kington. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/xlh-uk retrieved: 2026-08-23T01:02:10.311Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer Xlh UK is a registered charity (number 1196811) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives. Its latest reported income was £13,252 (year ending 2025-01-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about Xlh UK? Registered charity number 1196811 Status Registered (active) Charity type CIO Location Kington Latest income (year ending 2025-01-31) £13,252 Website [xlhuk.org](https://xlhuk.org/) ## What does Xlh UK do? XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care. ## What causes is Xlh UK registered for? The Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for Xlh UK yet? The Clarity Score is computed from full financial filing history. Xlh UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=xlh-uk&type=claim) [Visit charity website](https://xlhuk.org/) ## Frequently asked questions Is Xlh UK a legitimate charity? Yes. Xlh UK is a legitimate registered charity (charity number 1196811) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is Xlh UK's charity number? Xlh UK's charity number is 1196811. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1196811? Search 1196811 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Xlh UK do? XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care. Does Xlh UK have reviews and complaints? CharityCompare does not host public user reviews for Xlh UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Xlh UK? Xlh UK's website is https://xlhuk.org/ — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1196811).