Cystinosis Foundation of the UK
Cystinosis Foundation of the UK is a registered charity in England & Wales working in the advancement of health or saving of lives, based in Unit 81304.
Quick answer
What are the key facts about Cystinosis Foundation of the UK?
- Registered charity number
- 1074885
- Status
- Registered (active)
- Charity type
- Other
- Location
- Unit 81304
- Latest income (year ending 2025-03-31)
- £34,431
- Website
- www.cystinosis.org.uk
What does Cystinosis Foundation of the UK do?
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
What causes is Cystinosis Foundation of the UK registered for?
Why is there no Clarity Score for Cystinosis Foundation of the UK yet?
The Clarity Score is computed from full financial filing history. Cystinosis Foundation of the UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.
Frequently asked questions
- Is Cystinosis Foundation of the UK a legitimate charity?
- Yes. Cystinosis Foundation of the UK is a legitimate registered charity (charity number 1074885) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.
- What is Cystinosis Foundation of the UK's charity number?
- Cystinosis Foundation of the UK's charity number is 1074885. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
- How do I check charity number 1074885?
- Search 1074885 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does Cystinosis Foundation of the UK do?
- To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
- Does Cystinosis Foundation of the UK have reviews and complaints?
- CharityCompare does not host public user reviews for Cystinosis Foundation of the UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
- How can I donate to Cystinosis Foundation of the UK?
- Cystinosis Foundation of the UK's website is http://www.cystinosis.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the Open Government Licence v3.0. Always verify current details on the official register entry.