Desmoid Aid UK
Desmoid Aid UK is a registered charity in England & Wales working in general charitable purposes, based in Ockenden Road.
Quick answer
What are the key facts about Desmoid Aid UK?
- Registered charity number
- 1207309
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Ockenden Road
- Latest income (year ending 2025-03-31)
- £8,134
- Website
- www.desmoidaiduk.com
What does Desmoid Aid UK do?
Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
What causes is Desmoid Aid UK registered for?
Why is there no Clarity Score for Desmoid Aid UK yet?
The Clarity Score is computed from full financial filing history. Desmoid Aid UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
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Frequently asked questions
- Is Desmoid Aid UK a legitimate charity?
- Yes. Desmoid Aid UK is a legitimate registered charity (charity number 1207309) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.
- What is Desmoid Aid UK's charity number?
- Desmoid Aid UK's charity number is 1207309. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
- How do I check charity number 1207309?
- Search 1207309 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does Desmoid Aid UK do?
- Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
- Does Desmoid Aid UK have reviews and complaints?
- CharityCompare does not host public user reviews for Desmoid Aid UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
- How can I donate to Desmoid Aid UK?
- Desmoid Aid UK's website is http://www.desmoidaiduk.com — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the Open Government Licence v3.0. Always verify current details on the official register entry.