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Registered charity · No. 1126894Trust

Fanconi Hope

Independent profile · Charity Commission for England and Wales data

Fanconi Hope is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives.

Register extract · Not yet rated

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At a glance · official register

What are the key facts about Fanconi Hope?

Reported income · year ending 2025-04-30
£54,779
Reported spending · year ending 2025-04-30
£75,014
Registered charity number
1126894
Status in source extract
Registered
Charity type
Trust
Register contact address detail (not service area)
New Street
Registered for Gift Aid (HMRC)
Yes

Quick answer

Fanconi Hope (number 1126894) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.

What does Fanconi Hope do?

Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.

Activities reported on the official register · extract 2026-10-04.

From the annual return

Pay, income, Gift Aid and registration details for Fanconi Hope

Answers Fanconi Hope gave in its annual return to the Charity Commission for the year ending 30 April 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.

How much are Fanconi Hope's highest-paid staff paid?

Fanconi Hope's annual return for the year ending 30 April 2025 reports no employees paid more than £60,000.

The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.

Can I claim Gift Aid, and are the trustees paid?

The register records Fanconi Hope as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid

Fanconi Hope's annual return for the year ending 30 April 2025 reports that no trustee received remuneration or other benefits from the charity.

Registration details

Registered as a charity
Where it says it operates
Throughout England and Wales

Who it supports and how it works

Reported beneficiaries: Children/young People; People With Disabilities; The General Public/mankind.

Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.

Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.

What causes is Fanconi Hope registered for?

The Advancement Of Health Or Saving Of Lives

Why is there no Clarity Score for Fanconi Hope yet?

Our dataset does not yet contain the detailed filing history needed to score Fanconi Hope. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. How scoring works

What should you check before donating to Fanconi Hope?

  • Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
  • Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
  • Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.

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Is this your charity?

Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.

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Frequently asked questions

Is Fanconi Hope a legitimate charity?
The register data used for this profile lists Fanconi Hope as a registered charity (number 1126894) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Fanconi Hope's charity number?
Fanconi Hope's charity number is 1126894. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1126894?
Search 1126894 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Fanconi Hope do?
Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.
Does Fanconi Hope have reviews and complaints?
CharityCompare does not host public user reviews for Fanconi Hope. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Fanconi Hope?
Fanconi Hope's website listed in our register data is http://www.fanconihope.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Fanconi Hope's chief executive paid?
The Charity Commission register does not name individual salaries. Fanconi Hope's annual return for the year ending 30 April 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Fanconi Hope?
The register records Fanconi Hope as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Fanconi Hope's trustees paid?
Fanconi Hope's annual return for the year ending 30 April 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Fanconi Hope registered as a charity?
Fanconi Hope was entered on the register on 24 November 2008.

Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the Open Government Licence v3.0. Always verify current details on the official register entry.