Fop Friends (number 1147704) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Fop Friends do?
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Fop Friends
Answers Fop Friends gave in its annual return to the Charity Commission for the year ending 31 December 2024, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Fop Friends's highest-paid staff paid?
Fop Friends's annual return for the year ending 31 December 2024 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register records Fop Friends as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Fop Friends's annual return for the year ending 31 December 2024 reports that one or more trustees received payments or other benefits. Charity law allows this only in limited circumstances; the trustees' annual report should explain it.
Registration details
Registered as a charity
Previous names on the register
Fop Friends of Oliver; Friends of Oliver; Fop Action
Where it says it operates
Throughout England and Wales · United States
Who it supports and how it works
Reported beneficiaries: Other Charities Or Voluntary Bodies; Other Defined Groups; The General Public/mankind.
Reported activities: Provides Other Finance; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Fop Friends registered for?
The Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Fop Friends yet?
Our dataset does not yet contain the detailed filing history needed to score Fop Friends.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Fop Friends?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Fop Friends as a registered charity (number 1147704) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Fop Friends's charity number?
Fop Friends's charity number is 1147704. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1147704?
Search 1147704 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Fop Friends do?
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Does Fop Friends have reviews and complaints?
CharityCompare does not host public user reviews for Fop Friends. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Fop Friends?
Fop Friends's website listed in our register data is http://www.fopfriends.com. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Fop Friends's chief executive paid?
The Charity Commission register does not name individual salaries. Fop Friends's annual return for the year ending 31 December 2024 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Fop Friends?
The register records Fop Friends as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Fop Friends's trustees paid?
Fop Friends's annual return for the year ending 31 December 2024 reports that one or more trustees received payments or other benefits. Charity law allows this only in limited circumstances; the trustees' annual report should explain it.
What was Fop Friends previously called?
The register lists these previous names for Fop Friends: Fop Friends of Oliver; Friends of Oliver; Fop Action.
When was Fop Friends registered as a charity?
Fop Friends was entered on the register on 15 June 2012.