Skip to content
Registered charity · No. 1001307Charitable company

Haemochromatosis UK

Independent profile · Charity Commission for England and Wales data

Haemochromatosis UK is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives.

Register extract · Not yet rated

Visit charity website Check official registration

Work at Haemochromatosis UK? Claim this profile free to add your own description, logo and links.

At a glance · official register

What are the key facts about Haemochromatosis UK?

Reported income · year ending 2025-12-31
£565,416
Reported spending · year ending 2025-12-31
£657,788
Registered charity number
1001307
Status in source extract
Registered
Charity type
Charitable company
Register contact address detail (not service area)
Flaxmill Lane
Registered for Gift Aid (HMRC)
Yes

Quick answer

Haemochromatosis UK (number 1001307) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.

What does Haemochromatosis UK do?

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

Activities reported on the official register · extract 2026-10-04.

From the annual return

Pay, income, Gift Aid and registration details for Haemochromatosis UK

Answers Haemochromatosis UK gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.

How much are Haemochromatosis UK's highest-paid staff paid?

Haemochromatosis UK's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000.

The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.

Where does Haemochromatosis UK's money come from?

Haemochromatosis UK reported £565k total income for the year ending 31 December 2025. The largest sources were charitable activities £457k (81%), donations and legacies £104k (18%), investments £5,282 (1%). Legacies (gifts in wills) contributed £7,930.

  • Charitable activities (fees and contracts)£457k · 81%
  • Donations and legacies£104k · 18%
  • Investments£5,282 · 1%

Can I claim Gift Aid, and are the trustees paid?

The register records Haemochromatosis UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid

Haemochromatosis UK's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.

Registration details

Registered as a charity
Company number
02541361 (Companies House)
Also known as
Huk
Previous names on the register
The Haemochromatosis Society
Where it says it operates
Throughout England and Wales · Scotland · Northern Ireland

Who it supports and how it works

Reported beneficiaries: Other Defined Groups.

Reported activities: Makes Grants To Organisations; Provides Other Finance; Provides Services; Provides Advocacy/advice/information.

Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.

What causes is Haemochromatosis UK registered for?

The Advancement Of Health Or Saving Of Lives

Why is there no Clarity Score for Haemochromatosis UK yet?

Our dataset does not yet contain the detailed filing history needed to score Haemochromatosis UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. How scoring works

What should you check before donating to Haemochromatosis UK?

  • Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
  • Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
  • Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.

How to read charity accounts · Explore rated charities

Is this your charity?

Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.

Claim this profile — free Visit charity website

Frequently asked questions

Is Haemochromatosis UK a legitimate charity?
The register data used for this profile lists Haemochromatosis UK as a registered charity (number 1001307) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Haemochromatosis UK's charity number?
Haemochromatosis UK's charity number is 1001307. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1001307?
Search 1001307 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Haemochromatosis UK do?
To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.
Does Haemochromatosis UK have reviews and complaints?
CharityCompare does not host public user reviews for Haemochromatosis UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Haemochromatosis UK?
Haemochromatosis UK's website listed in our register data is http://www.haemochromatosis.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Haemochromatosis UK's chief executive paid?
The Charity Commission register does not name individual salaries. Haemochromatosis UK's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Where does Haemochromatosis UK's money come from?
Haemochromatosis UK reported £565k total income for the year ending 31 December 2025. The largest sources were charitable activities £457k (81%), donations and legacies £104k (18%), investments £5,282 (1%). Legacies (gifts in wills) contributed £7,930.
Can I claim Gift Aid on a donation to Haemochromatosis UK?
The register records Haemochromatosis UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Haemochromatosis UK's trustees paid?
Haemochromatosis UK's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
What was Haemochromatosis UK previously called?
The register lists this previous name for Haemochromatosis UK: The Haemochromatosis Society.
When was Haemochromatosis UK registered as a charity?
Haemochromatosis UK was entered on the register on 17 December 1990. It is also a company registered at Companies House (company number 02541361).

Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the Open Government Licence v3.0. Always verify current details on the official register entry.