International Niemann-Pick Disease Registry
International Niemann-Pick Disease Registry is a registered charity in England & Wales working in education/training, the advancement of health or saving of lives, based in North Sands Business Centre.
Quick answer
What are the key facts about International Niemann-Pick Disease Registry?
- Registered charity number
- 1175311
- Status
- Registered (active)
- Charity type
- Charitable company
- Location
- North Sands Business Centre
- Latest income (year ending 2025-03-31)
- £447,821
- Website
- www.inpdr.org
What does International Niemann-Pick Disease Registry do?
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
What causes is International Niemann-Pick Disease Registry registered for?
Why is there no Clarity Score for International Niemann-Pick Disease Registry yet?
The Clarity Score is computed from full financial filing history. International Niemann-Pick Disease Registry is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
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Frequently asked questions
- Is International Niemann-Pick Disease Registry a legitimate charity?
- Yes. International Niemann-Pick Disease Registry is a legitimate registered charity (charity number 1175311) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.
- What is International Niemann-Pick Disease Registry's charity number?
- International Niemann-Pick Disease Registry's charity number is 1175311. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
- How do I check charity number 1175311?
- Search 1175311 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does International Niemann-Pick Disease Registry do?
- The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
- Does International Niemann-Pick Disease Registry have reviews and complaints?
- CharityCompare does not host public user reviews for International Niemann-Pick Disease Registry. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
- How can I donate to International Niemann-Pick Disease Registry?
- International Niemann-Pick Disease Registry's website is http://www.inpdr.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the Open Government Licence v3.0. Always verify current details on the official register entry.