Shwachman Diamond Syndrome UK
Shwachman Diamond Syndrome UK is a registered charity in England & Wales working in general charitable purposes, education/training, the advancement of health or saving of lives, based in Washingborough.
Quick answer
What are the key facts about Shwachman Diamond Syndrome UK?
- Registered charity number
- 1164269
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Washingborough
- Latest income (year ending 2025-10-31)
- £56,700
- Website
- www.sdsuk.org
What does Shwachman Diamond Syndrome UK do?
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
What causes is Shwachman Diamond Syndrome UK registered for?
Why is there no Clarity Score for Shwachman Diamond Syndrome UK yet?
The Clarity Score is computed from full financial filing history. Shwachman Diamond Syndrome UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.
Frequently asked questions
- Is Shwachman Diamond Syndrome UK a legitimate charity?
- Yes. Shwachman Diamond Syndrome UK is a legitimate registered charity (charity number 1164269) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.
- What is Shwachman Diamond Syndrome UK's charity number?
- Shwachman Diamond Syndrome UK's charity number is 1164269. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
- How do I check charity number 1164269?
- Search 1164269 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does Shwachman Diamond Syndrome UK do?
- To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
- Does Shwachman Diamond Syndrome UK have reviews and complaints?
- CharityCompare does not host public user reviews for Shwachman Diamond Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
- How can I donate to Shwachman Diamond Syndrome UK?
- Shwachman Diamond Syndrome UK's website is http://www.sdsuk.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the Open Government Licence v3.0. Always verify current details on the official register entry.