The Ultra Rare Diseases, Disorders and Disabilities Foundation
The Ultra Rare Diseases, Disorders and Disabilities Foundation is a registered charity in Northern Ireland working in the advancement of education, the advancement of health or the saving of lives, the relief of those in need by reason of youth, based in Belfast.
Quick answer
What are the key facts about The Ultra Rare Diseases, Disorders and Disabilities Foundation?
- Registered charity number
- NIC102130
- Status
- Registered (active)
- Charity type
- Memorandum and Articles
- Location
- Belfast
- Latest income (year ending 2019-08-31)
- £11,234
- Website
- www.urddad-foundation.org.uk
What does The Ultra Rare Diseases, Disorders and Disabilities Foundation do?
The Company is established to: 1. Support those people, their families, dependence and carers ("the beneficiaries") affected by or believe to be affected by Ultra rare diseases/Rare diseases or disorder and their disabilities caused by Ultra rare/rare Diseases in Northern Ireland and any part of the world ("the area of benefit") 2. advance the education of the public in all matters concerning rare diseases, disorders and disabilities.
What causes is The Ultra Rare Diseases, Disorders and Disabilities Foundation registered for?
Why is there no Clarity Score for The Ultra Rare Diseases, Disorders and Disabilities Foundation yet?
The Clarity Score is computed from full financial filing history. The Ultra Rare Diseases, Disorders and Disabilities Foundation is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
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Frequently asked questions
- Is The Ultra Rare Diseases, Disorders and Disabilities Foundation a legitimate charity?
- Yes. The Ultra Rare Diseases, Disorders and Disabilities Foundation is a legitimate registered charity (charity number NIC102130) regulated by the Charity Commission for Northern Ireland (CCNI). You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.
- What is The Ultra Rare Diseases, Disorders and Disabilities Foundation's charity number?
- The Ultra Rare Diseases, Disorders and Disabilities Foundation's charity number is NIC102130. Check that number on the CCNI register or this CharityCompare profile before you donate.
- How do I check charity number NIC102130?
- Search NIC102130 on the Charity Commission for Northern Ireland (CCNI) register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does The Ultra Rare Diseases, Disorders and Disabilities Foundation do?
- The Company is established to: 1. Support those people, their families, dependence and carers ("the beneficiaries") affected by or believe to be affected by Ultra rare diseases/Rare diseases or disorder and their disabilities caused by Ultra rare/rare Diseases in Northern Ireland and any part of the world ("the area of benefit") 2. advance the education of the public in all matters concerning rare diseases, disorders and disabilities.
- Does The Ultra Rare Diseases, Disorders and Disabilities Foundation have reviews and complaints?
- CharityCompare does not host public user reviews for The Ultra Rare Diseases, Disorders and Disabilities Foundation. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for Northern Ireland (CCNI) or the Fundraising Regulator as appropriate.
- How can I donate to The Ultra Rare Diseases, Disorders and Disabilities Foundation?
- The Ultra Rare Diseases, Disorders and Disabilities Foundation's website is http://www.urddad-foundation.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for Northern Ireland (CCNI) register extract dated 2026-08-12, used under the Open Government Licence v3.0. Always verify current details on the official register entry.